E386 CMAJ, September 8, 2015, 187 (12) in the same journal reported that tokenism is
common. But that article also concluded that with proper guidance and measurable …

To ensure that the information resulting from research is relevant to patients, the Patient‐
Centered Outcomes Research Institute eschews the “traditional health research” paradigm …

With the increase in patient and consumer activism through the late twentieth century and
into this century, patient roles in research evolved into a new model of research …

Background There is growing interest in patient and stakeholder engagement in research,
yet limited evidence about effective methods. Since 2012, the Patient-Centered Outcomes …

Charged with ensuring that research produces useful evidence to inform health decisions,
the Patient-Centered Outcomes Research Institute (PCORI) requires investigators to engage …

Engaging patients in research has come to be viewed as a vital component of high‐quality
research, and funders now regard engaging patients and other stakeholders as a core …

Albertans4HealthResearch, supported by the Alberta Strategy for Patient-Oriented Research
Patient Engagement Team, hosted a virtual round table discussion to develop a list of …

The IMPACT projects demonstrate the intuitive: patients are valuable partners and contribute
meaningfully in many ways. Across all projects, patient or community partners were …

IntroductionEffective patient engagement is central to patient-centered outcomes research. A
well-designed infrastructure supports and facilitates patient engagement, enabling study …

In recent years, we have seen an expansion of patient and public involvement (PPI)
activities in research. This has been accompanied by a growing interest in understanding …