[HTML][HTML] Helping clinicians and patients navigate electronic patient portals: ethical and legal principles
S Mehta, T Jamieson, AD Ackery - CMAJ, 2019 - Can Med Assoc
CMAJ| OCTOBER 7, 2019| VOLUME 191| ISSUE 40 E1101 patient portal, it is crucial to
define which person, group or organization is the custodian to frame legal responsibility. A …
define which person, group or organization is the custodian to frame legal responsibility. A …
Patient portal access for caregivers of adult and geriatric patients: reframing the ethics of digital patient communication
Patient portals are poised to transform health communication by empowering patients with
rapid access to their own health data. The 21st Century Cures Act is a US federal law that …
rapid access to their own health data. The 21st Century Cures Act is a US federal law that …
The new era of informed consent: getting to a reasonable-patient standard through shared decision making
ES Spatz, HM Krumholz, BW Moulton - Jama, 2016 - jamanetwork.com
Therightsofpatientstobeinformedaboutcared… in clinical practice is yet again under scrutiny,
both in the United States and around the world. The well-ingrained ethical-legal process of …
both in the United States and around the world. The well-ingrained ethical-legal process of …
Provider obligations for patient portals under the 21st Century Cures Act
A Dworkowitz - Health Affairs Forefront, 2022 - healthaffairs.org
When Congress prohibited “information blocking” under the 21st Century Cures Act in 2016,
it made no reference to patient portals, the websites through which many health care …
it made no reference to patient portals, the websites through which many health care …
Informed consent is inadequate and shared decision making is ineffective: Arguing for the primacy of authenticity in decision-making paradigms
J Berger - The American Journal of Bioethics, 2017 - Taylor & Francis
Ubel and colleagues report on a variety of deficits affecting the quality of decision making in
health care (Ubel, Scherr, and Fagerlin 2017). Although shared decision making is intended …
health care (Ubel, Scherr, and Fagerlin 2017). Although shared decision making is intended …
[HTML][HTML] Point and counterpoint: patient control of access to data in their electronic health records
K Caine, WM Tierney - Journal of general internal medicine, 2015 - Springer
Information collection, storage, and management is central to the practice of health care. For
centuries, patients' and providers' expectations kept medical records confidential between …
centuries, patients' and providers' expectations kept medical records confidential between …
21st Century Cures Act: ethical recommendations for new patient-facing products
BN Durieux, M DeCamp… - Journal of the American …, 2022 - academic.oup.com
Background Recent legislation ensuring patient access to their electronic health records
represents a promising national commitment to patient empowerment. Access and …
represents a promising national commitment to patient empowerment. Access and …
From paternalistic to patient-centered: Strategies to support patients with the immediate release of medical records
LD Leonard, E Cumbler… - … Journal of Surgery, 2021 - americanjournalofsurgery.com
Imagine your patient receiving a notification on their smartphone. They open their patient
portal while sitting in the bleachers at their child's baseball game and read the results of their …
portal while sitting in the bleachers at their child's baseball game and read the results of their …
Navigating Clinical and Business Ethics While Sharing Patient Data
KN Michelson, JG Adams, JMM Faber - Jama, 2022 - jamanetwork.com
The primary function of electronic health care data is to enable the provision of health care
services to individuals. Sharing these data for public health and research purposes are …
services to individuals. Sharing these data for public health and research purposes are …
Getting off the leash
T Tomlinson - The American Journal of Bioethics, 2018 - Taylor & Francis
Klugman and colleagues (2018) provide a very useful overview of the tremendous variety of
ethical and legal questions raised by the emergence of" digital medicines," especially those …
ethical and legal questions raised by the emergence of" digital medicines," especially those …