One of the great medical success stories of the last 25 years is the taming of many serious
childhood diseases that previously killed children only a generation ago. Adults with cystic …

Care integration for patients with lifelong conditions requires successful transitions at key,
high-risk times. For conditions diagnosed and traditionally managed within paediatric …

The health care environment in the United States heralds changing population
demographics, presenting challenges for modern health care systems. The most remarkable …

Patients with congenital cardiac disease require lifelong medical care. Current challenges
that face practitioners who care for adults with congenital heart disease include identifying …

The number of adults with congenital heart disease (CHD) has increased significantly over
the past 20 years. Palliative surgery and, more recently, non-surgical and medical …

Improved surgical techniques and medical therapies for pediatric patients with congenital
heart disease have thrust generations of survivors into adulthood. A centralized database for …

In this issue of the Journal, Moons and associates [1] describe patient attitudes toward the
transfer of patients with congenital heart disease (CHD) from a pediatric cardiology program …

Each year in the US, an estimated 750 000 youth with special health care needs transition
from adolescence into adulthood. 1 There is thus a growing population of adult survivors of …

Congenital heart disease (CHD) patient organizations, comprised of experts with lived
experience, and their families and supporters, have become an essential voice for patient …

Comprehensive care is the cornerstone of the management of adults with congenital cardiac
disease (CHD). Such patients are not cured by the surgery that was undertaken in childhood …