For patient involvement in clinical research

LC Loh - CMAJ, 2017 - Can Med Assoc
As a public health physician, the involvement of key stakeholders in planning, research, and
evaluation of policies and programs has long been well understood—even if it faces …

Patient‐engaged research: Choosing the “right” patients to avoid pitfalls

EA Largent, HF Lynch, MS McCoy - Hastings Center Report, 2018 - Wiley Online Library
To ensure that the information resulting from research is relevant to patients, the Patient‐
Centered Outcomes Research Institute eschews the “traditional health research” paradigm …

[HTML][HTML] A critical discussion of patient engagement in research

AE Bombak, HM Hanson - Journal of Patient-Centered Research …, 2017 - ncbi.nlm.nih.gov
Patients are increasingly expected to take a more involved role in research. Funding for
some projects now requires incorporating patients' viewpoints or involvement in research …

[PDF][PDF] Involving patients in research: what have we done and how did we do it? Lessons learned from the Patient-Centered Outcomes Research Institute (PCORI).

JR Slutsky - 2014 - pdfs.semanticscholar.org
How can you demonstrate this in your proposal?• Include in your application a plan for
“check-ins” with patient partners to monitor their perceptions of the extent to which a) they …

[HTML][HTML] Using qualitative research perspectives to inform patient engagement in research

M Phoenix, T Nguyen, SJ Gentles… - Research involvement …, 2018 - Springer
Plain English summary In Canada, and internationally, there is an increased demand for
patient engagement in health care research. Patients are being involved throughout the …

Characterizing Patient Engagement in Research Funded by the Patient-Centered Outcomes Research Institute and Exploring the Moral Importance of Patient …

LE Ellis - 2015 - jscholarship.library.jhu.edu
Patient engagement in research includes a range of activities in which researchers involve
patients in ways other than as subjects of research. Research funders and researchers are …

Patient involvement in clinical research: why, when, and how

JA Sacristán, A Aguarón… - Patient preference …, 2016 - Taylor & Francis
The development of a patient-centered approach to medicine is gradually allowing more
patients to be involved in their own medical decisions. However, this change is not …

[PDF][PDF] Initiative to support patient involvement in research (INSPIRE)

D Lavallee, J Gore, S Lawrence, J Lindsay… - Patient-Centered …, 2016 - becertain.org
Until recently, patient participation in research was limited to involvement as subjects
enrolled in research studies. The establishment of the Patient-Centered Outcomes Research …

[PDF][PDF] Contributions of Patient Engagement In Research: Early Findings From The Patient-Centered Outcomes Research Institute

L Forsythe, K Carman - m.jimmypike.com
Contributions of Patient Engagement in Research: Early Findings from the Patient-Centered
Outcomes Research Institute Page 1 Contributions of Patient Engagement In Research: Early …

Active patient engagement in research

L Frank - Health Affairs, 2013 - search.proquest.com
Paul Gionfriddo's account (Sep 2012) of his son's journey through the education and health
systems is heartrending and provides important insight into the impact of health policy on …