Medical decision-making in paediatrics: infancy to adolescence

KW Coughlin - Paediatrics & Child Health, 2018 - academic.oup.com
Medical decision-making in the paediatric population is complicated by the wide variation in
physical and psychological development that occurs as children progress from infancy to …

Presymptomatic and predictive genetic testing in minors: a systematic review of guidelines and position papers

P Borry, L Stultiëns, H Nys, JJ Cassiman… - Clinical …, 2006 - Wiley Online Library
The objective of this study is to review ethical and clinical guidelines and position papers
concerning the presymptomatic and predictive genetic testing of minors. The databases …

[BOOK][B] Children and international human rights law: The right of the child to be heard

A Parkes - 2013 - taylorfrancis.com
The United Nations Convention on the Rights of the Child 1989 is one of the most highly
ratified human rights treaties in the world, with 192 states currently signed up to it. Article …

Children's participation in decision-making: balancing protection with shared decision-making using a situational perspective

I Coyne, M Harder - Journal of Child Health Care, 2011 - journals.sagepub.com
Children's participation in decision-making in the health care setting is complex because
parents and health professionals tend to take a protective stance towards children to act in …

Interdependent functions of communication with adolescents and young adults in oncology

BA Sisk, M Keenan, GL Schulz, E Kaye… - Pediatric blood & …, 2022 - Wiley Online Library
Background Communication is central to patient‐centered care in adolescent and young
adult (AYA) cancer. Previously, we developed a functional communication model from …

Decision‐making during hospitalization: Parents' and children's involvement

I Hallström, G Elander - Journal of clinical nursing, 2004 - Wiley Online Library
Background. Ethical duties of health professionals include the obligation to enhance their
patients' competence and ability to participate. Aims and objectives. To explore what kind of …

Coping with chronic disease from the perspective of children and adolescents–a conceptual framework and its implications for participation

S Schmidt, C Petersen… - Child: care, health and …, 2003 - Wiley Online Library
In medical and health psychology, efforts have increasingly been made to assess coping of
children and adolescents with chronic conditions. In contrast to the study of coping in adults …

[HTML][HTML] Physician decision-making process about withholding/withdrawing life-sustaining treatments in paediatric patients: a systematic review of qualitative evidence

Y Zhong, A Cavolo, V Labarque, C Gastmans - BMC Palliative Care, 2022 - Springer
Background With paediatric patients, deciding whether to withhold/withdraw life-sustaining
treatments (LST) at the end of life is difficult and ethically sensitive. Little is understood about …

Ethics in exercise science research

RJ Shephard - Sports Medicine, 2002 - Springer
Ethical evaluation is a vital but sometimes neglected component of research policy in the
exercise sciences. This article reviews some issues in human research, with particular …

[BOOK][B] Children's rights: From philosophy to public policy

M Cowden - 2016 - books.google.com
Despite the existence of the UN Convention on the Rights of the Child there still exists a
debate on whether children can really hold rights. This book presents a clear theory of …