Communication with parents concerning withholding or withdrawing of life-sustaining interventions in neonatology

A Janvier, K Barrington, B Farlow - Seminars in perinatology, 2014 - Elsevier
The nature and content of the conversations between the healthcare team and the parents
concerning withholding or withdrawing of life-sustaining interventions for neonates vary …

Moral distress within neonatal and paediatric intensive care units: a systematic review

T Prentice, A Janvier, L Gillam, PG Davis - Archives of disease in …, 2016 - adc.bmj.com
Objective To review the literature on moral distress experienced by nursing and medical
professionals within neonatal intensive care units (NICUs) and paediatric intensive care units (…

Personalized decision making: practical recommendations for antenatal counseling for fragile neonates

…, A Payot, K Robson, A Janvier - Clinics in …, 2017 - perinatology.theclinics.com
Fifty years ago, it was not rare for infants born with congenital anomalies or near-term to die.
Neonatology is a recent specialty, emerging in the 1960s as a discipline dedicating itself to …

Stronger and more vulnerable: a balanced view of the impacts of the NICU experience on parents

A Janvier, J Lantos, J Aschner, K Barrington… - …, 2016 - publications.aap.org
For parents, the experience of having an infant in the NICU is often psychologically traumatic.
No parent can be fully prepared for the extreme stress and range of emotions of caring for …

Our children are not a diagnosis: the experience of parents who continue their pregnancy after a prenatal diagnosis of trisomy 13 or 18

…, B Farlow, T Brazg, A Janvier - American journal of …, 2014 - Wiley Online Library
Trisomy 13 and trisomy 18 (T13‐18) are associated with high rates of perinatal death and
with severe disability among survivors. Prenatal diagnosis (PND) may lead many women to …

Moral distress of clinicians in Canadian pediatric and neonatal ICUs

…, G Tomlinson, N Roumeliotis, A Janvier… - Pediatric critical care …, 2020 - journals.lww.com
Objective: To quantify moral distress in neonatal ICU and PICU clinicians and to identify
associated factors. Design: A national cross-sectional survey of clinicians working in an …

The best-interest standard is not applied for neonatal resuscitation decisions

A Janvier, I Leblanc, KJ Barrington - Pediatrics, 2008 - publications.aap.org
OBJECTIVE. Legal and ethical standards require resuscitation when it is considered to be
in the patient's best interest. We hypothesized that newborn infants might be dealt with …

Helping parents cope in the NICU

MF Haward, J Lantos, A Janvier, POST Group - Pediatrics, 2020 - publications.aap.org
Parenting in the NICU is an intense journey. Parents struggle to build intimacy with their child
amid complex emotions and medical uncertainties. They need to rapidly adapt their vision …

Apnea is associated with neurodevelopmental impairment in very low birth weight infants

A Janvier, M Khairy, A Kokkotis, C Cormier… - Journal of …, 2004 - nature.com
METHODS: We determined the number of days that apnea and bradycardia spells were
noted by the nursing staff, during the initial hospitalization of 175 preterm infants of less than< …

The experience of families with children with trisomy 13 and 18 in social networks

A Janvier, B Farlow, BS Wilfond - Pediatrics, 2012 - publications.aap.org
BACKGROUND: Children with trisomy 13 and trisomy 18 (T13-18) have low survival rates
and survivors have significant disabilities. For these reasons, interventions are generally not …