Purpose: The purpose of this study was to evaluate the quality of life of a group of adults who were serving as primary caregivers for 118 hospice patients with cancer who were receiving hospice home care in west central Florida.
Description of study: The Caregiver Quality of Life Index, used in the study, includes items related to physical, emotional, social, and financial well-being. The Caregiver Quality of Life Index was administered within 48 hours of admission to hospice and after 3 weeks of hospice care (during week 4).
Results: Quality of life scores remained stable from admission to week 4. Item scores were highest for social well-being (74.7 and 69.7) and lowest for physical well-being (60.6 and 63.7). No significant differences were found in item scores from admission to week 4.
Clinical implications: Quality of life of primary caregivers is negatively affected by caregiving, but the support provided by hospice care may help to ameliorate these effects. Health providers who are alert to caregiver needs and knowledgeable about the work of the multidisciplinary hospice team will be more likely to refer patients and caregivers to appropriate hospice care.