Help-seeking by older husbands caring for wives with dementia

J Adv Nurs. 2007 Aug;59(4):352-60. doi: 10.1111/j.1365-2648.2007.04290.x. Epub 2007 Jul 2.

Abstract

Aim: This paper reports a study to gain understanding of the help-seeking process of older husbands caring for wives with dementia.

Background: Men comprise 41% of spousal caregivers. However, few reports describe older husbands' caregiving experiences and none specifically explore help-seeking in men caring for wives with dementia.

Method: A grounded theory design was used to discover a theory of help-seeking by older caregiver husbands. Audiotaped interviews were conducted during 2004 and 2005 with nine husband participants. The interviews were analysed by a research group to discover the core category and the relationships of related categories to develop a theory of help-seeking that was grounded in the data. Margaret Newman's theory of Health as Expanding Conscious provided a theoretical perspective for interpretation of the findings.

Findings: The core category, 'Doing the best I can', was preceded by the antecedent of 'changing patterns'. Husbands made choices to use action/interaction strategies of 'Relinquishing', 'Reaching out' and 'Shouldering' which were influenced by a variety of internal, relational, situational, and experiential facilitating or hindering intervening conditions. The consequence of help-seeking process was 'Continuing on', which had categories of: 'Keeping at home', 'Staying together', and 'Taking care of myself'.

Conclusion: Help-seeking by older husband caregivers is complex and gender-specific. Interventions to assist these caregivers must also be gender-specific and complement already existing help-seeking patterns. Focusing on helping caregivers to discover their patterns of relating and help-seeking empowers them to find new ways of interacting and to discover possibilities for action.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adaptation, Psychological
  • Aged
  • Aged, 80 and over
  • Caregivers / psychology*
  • Dementia / nursing*
  • Humans
  • Male
  • Professional-Family Relations*
  • Psychological Theory
  • Social Support*
  • Spouses / psychology*
  • United States