Discussions about and importance of individual elements in determining goals of care
| Element | Patients n = 233 | Family members n = 205 | ||||
|---|---|---|---|---|---|---|
| Occurrence n/N (%) | Very or extremely important n/N (%) | Ranking by importance* | Occurrence n/N (%) | Very or extremely important n/N (%) | Ranking by importance* | |
| Asked the respondent about preferences for care in event of life-threatening illness | 46/214 (21.5) | 95/195 (48.7) | 1 | 45/186 (24.2) | 118/177 (66.7) | 4 |
| Inquired about the respondent’s values | 37/227 (16.3) | 98/215 (45.6) | 2 | 32/203 (15.8) | 126/194 (64.9) | 5 |
| Discussed prognosis | 22/224 (9.8) | 88/200 (44.0) | 3 | 35/202 (17.3) | 147/193 (76.2) | 1 |
| Gave an opportunity for the respondent to express fears or concerns | 50/222 (22.5) | 91/208 (43.8) | 4 | 52/182 (28.6) | 124/175 (70.9) | 2 |
| Asked the respondent if they had additional questions about goals of care | 44/221 (19.9) | 91/208 (43.8) | 5 | 63/199 (31.7) | 133/189 (70.4) | 3 |
| Provided information about outcomes, risks, benefits of comfort care | 22/223 (9.9) | 71/205 (34.6) | 6 | 35/201 (17.4) | 117/190 (61.6) | 6 |
| Asked about prior discussions or written documents | 54/227 (23.8) | 73/213 (34.3) | 7 | 59/203 (29.1) | 110/198 (55.6) | 9 |
| Offered a time to meet to discuss goals of care | 14/223 (6.3) | 61/202 (30.2) | 8 | 31/202 (15.3) | 113/193 (58.5) | 7 |
| Provided information about outcomes, risks, benefits of life sustaining treatments | 28/225 (12.4) | 58/207 (28.0) | 9 | 38/202 (18.8) | 107/192 (55.7) | 8 |
| Provided information to review about advance care planning before discussions | 8/228 (3.5) | 50/207 (24.2) | 10 | 8/203 (3.9) | 87/191 (45.5) | 10 |
| Helped access legal documents to record advance care plans | 3/219 (1.4) | 37/197 (18.8) | 11 | 3/200 (1.5) | 66/187 (35.3) | 11 |
↵* According to percentage of participants who ranked the element as very or extremely important; Spearman correlation coefficient = 0.001.