Characteristics of 26 patients and their caregivers who participated in the study
| Patient pseudonym | Caregiver pseudonym, relationship to patient | Patient’s age at first interview, yr | Diagnosis | Interviews | Format of interviews |
|---|---|---|---|---|---|
| Adam | Cindy, wife | 28 | Astrocytoma 2/3 | time 2, time 4, GP | Separate |
| Andrew | Sheila, wife | 45 | Glioblastoma multiforme | time 1, time 2, time 3, time 5, GP | Separate |
| Angus | None | 59 | Glioblastoma multiforme | time 2, GP | Individual |
| Ann | Oliver, husband | 66 | Not a glioma | time 1 | Paired |
| Barbara | John, husband | 45 | Oligodendroglioma | time 2, time 4, GP | Separate |
| Bill | Audrey, wife | 63 | Glioblastoma multiforme | time 2, time 3, time 4, time 5, GP | Paired |
| Christine | None | 37 | Astrocytoma 2 | time 3, GP | Individual |
| David | None | 48 | Brain stem glioma | time 2, time 3, time 4, GP | Individual |
| Deirdre | None | 56 | Glioblastoma multiforme | time 1, time 2, time 3, GP | Individual |
| Ewan | Harry, father | 21 | Glioblastoma multiforme | time 3, time 4, time 5, GP | Separate |
| Hannah | None | 35 | Not a glioma | time 1 | Individual |
| Harriet | Alistair, husband | 64 | Glioblastoma multiforme | time 2, time 3, GP | Paired |
| Henry | Alice, wife | 65 | Glioblastoma multiforme | time 1, time 2, time 3, time 4, GP | Paired |
| Ian | Sharon, wife | 46 | Glioblastoma multiforme | time 1, time 2, time 3, time 5, GP | Separate |
| Jenny | Bob and Diane, parents | 34 | Not a glioma | time 1 | Paired and separate |
| Lois | Steven, husband | 50 | Glioblastoma multiforme | time 3, GP | Separate |
| Malcolm | Joan, wife | 43 | Anaplastic astrocytoma | time 1, time 2, time 3, GP | Paired |
| Mary | Jim, husband Ailsa, daughter | 76 | Anaplastic astrocytoma | time 1, time 2, time 5, GP | Paired |
| Robert | Beth, wife | 36 | Glioblastoma multiforme | time 2, GP | Paired |
| Ron | Betty, wife | 64 | Glioblastoma multiforme | time 2, time 3, time 4, GP | Paired |
| Sandra | Stuart, husband | 46 | Not a glioma | time 1 | Paired |
| Sandy | Julie, wife Cara, daughter | 47 | Glioblastoma multiforme | time 1, time 2, time 5, GP | Separate |
| Sarah | James, husband | 66 | Not a glioma | time 1 | Separate |
| William | Shauna, wife | 64 | Glioblastoma multiforme | time 2, time 3, time 4, time 5, GP | Paired |
| Wilson | Angie, wife | 58 | Glioblastoma multiforme | time 2, time 3, time 4, time 5, GP | Separate |
| Winnie | Norman, husband | 59 | Glioblastoma multiforme | time 1, time 2, time 5, GP | Paired |
Note: time 1 = before diagnosis, time 2 = after diagnosis and before treatment, time 3 = after treatment, time 4 = six months’ follow-up, time 5 = bereavement, GP = interview with general practitioner around time 3.