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Guideline
Open Access

Core elements of participant consent documents for Canadian human genomics research and the National Human Genome Library: guidance for policy

Holly Longstaff, Jaime Flamenbaum, Etienne Richer, Jeanne Egar, Christopher R. McMaster and Ma’n H. Zawati
CMAJ November 15, 2022 194 (44) E1500-E1508; DOI: https://doi.org/10.1503/cmaj.212063
Holly Longstaff
Provincial Health Services Authority of British Columbia (Longstaff); Faculty of Health Sciences (Longstaff), Simon Fraser University, Burnaby, BC; Ethics Office, Science and Policy Branch (Flamenbaum), Canadian Institutes of Health Research, Ottawa, Ont.; Institute of Genetics (Richer, Egar, McMaster) Canadian Institutes of Health Research, Halifax, NS; Centre of Genomics and Policy (Zawati), McGill University, Montréal, Que.
PhD
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Jaime Flamenbaum
Provincial Health Services Authority of British Columbia (Longstaff); Faculty of Health Sciences (Longstaff), Simon Fraser University, Burnaby, BC; Ethics Office, Science and Policy Branch (Flamenbaum), Canadian Institutes of Health Research, Ottawa, Ont.; Institute of Genetics (Richer, Egar, McMaster) Canadian Institutes of Health Research, Halifax, NS; Centre of Genomics and Policy (Zawati), McGill University, Montréal, Que.
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Etienne Richer
Provincial Health Services Authority of British Columbia (Longstaff); Faculty of Health Sciences (Longstaff), Simon Fraser University, Burnaby, BC; Ethics Office, Science and Policy Branch (Flamenbaum), Canadian Institutes of Health Research, Ottawa, Ont.; Institute of Genetics (Richer, Egar, McMaster) Canadian Institutes of Health Research, Halifax, NS; Centre of Genomics and Policy (Zawati), McGill University, Montréal, Que.
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Jeanne Egar
Provincial Health Services Authority of British Columbia (Longstaff); Faculty of Health Sciences (Longstaff), Simon Fraser University, Burnaby, BC; Ethics Office, Science and Policy Branch (Flamenbaum), Canadian Institutes of Health Research, Ottawa, Ont.; Institute of Genetics (Richer, Egar, McMaster) Canadian Institutes of Health Research, Halifax, NS; Centre of Genomics and Policy (Zawati), McGill University, Montréal, Que.
MSc
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Christopher R. McMaster
Provincial Health Services Authority of British Columbia (Longstaff); Faculty of Health Sciences (Longstaff), Simon Fraser University, Burnaby, BC; Ethics Office, Science and Policy Branch (Flamenbaum), Canadian Institutes of Health Research, Ottawa, Ont.; Institute of Genetics (Richer, Egar, McMaster) Canadian Institutes of Health Research, Halifax, NS; Centre of Genomics and Policy (Zawati), McGill University, Montréal, Que.
PhD
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Ma’n H. Zawati
Provincial Health Services Authority of British Columbia (Longstaff); Faculty of Health Sciences (Longstaff), Simon Fraser University, Burnaby, BC; Ethics Office, Science and Policy Branch (Flamenbaum), Canadian Institutes of Health Research, Ottawa, Ont.; Institute of Genetics (Richer, Egar, McMaster) Canadian Institutes of Health Research, Halifax, NS; Centre of Genomics and Policy (Zawati), McGill University, Montréal, Que.
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  • Graham, M. (2022). Sharing genomic data for health research: institutional trust and trustworthiness, and informed consent. CMAJ, 194(44), E1511-E1512. Accessed September 28, 2023. https://doi.org/10.1503/cmaj.221500.
  • Longstaff, H., Flamenbaum, J., Richer, E., Egar, J., McMaster, C. R., & Zawati, M. H. (2022). Éléments fondamentaux des documents de consentement à participer à la recherche sur le génome humain au Canada et de la Bibliothèque génomique humaine pancanadienne : orientation pour l’établissement de politiques. CMAJ, 194(47), E1623-E1632. Accessed September 28, 2023. https://doi.org/10.1503/cmaj.212063-f.
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Canadian Medical Association Journal: 194 (44)
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15 Nov 2022
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Core elements of participant consent documents for Canadian human genomics research and the National Human Genome Library: guidance for policy
Holly Longstaff, Jaime Flamenbaum, Etienne Richer, Jeanne Egar, Christopher R. McMaster, Ma’n H. Zawati
CMAJ Nov 2022, 194 (44) E1500-E1508; DOI: 10.1503/cmaj.212063

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Core elements of participant consent documents for Canadian human genomics research and the National Human Genome Library: guidance for policy
Holly Longstaff, Jaime Flamenbaum, Etienne Richer, Jeanne Egar, Christopher R. McMaster, Ma’n H. Zawati
CMAJ Nov 2022, 194 (44) E1500-E1508; DOI: 10.1503/cmaj.212063
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  • Sharing genomic data for health research: institutional trust and trustworthiness, and informed consent
  • Éléments fondamentaux des documents de consentement à participer à la recherche sur le génome humain au Canada et de la Bibliothèque génomique humaine pancanadienne : orientation pour l’établissement de politiques
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