A home for patient-oriented research

Our collaborative research team commends CMAJ for launching the patient-oriented research collection in CMAJ Open.(1) Particularly, the specification for authors to report “how patients were engaged as part of the research team and how their contributions developed the work” is an opportunity to gather rich information about the role and function of patient partners.(1)

At the recent Knowledge Translation (KT) Canada 2018 Scientific Meeting (https://ktcanada.org/event/kt-canada-scientific-meeting-2018/), there was ample discussion about the lack of guidelines to report patient engagement in research. We believe research articles should consistently provide detailed, yet concise information about the engagement of patients in research projects. Indeed such information, when gathered by systematic reviews, could inform methodology for best practices of patient-oriented research.

An international effort has offered version two of the Guidance for Reporting Involvement of Patients and the Public (GRIPP2) checklist to facilitate standardization for studies to report patient and public engagement in research in publications.(2) Recognizing low-quality reporting of patient engagement in research, our research team has also recently published a framework outlining the core components for describing the processes of patient engagement.(3) Our framework complements the GRIPP2 and provides additional guidance for authors to consider while reporting the details of patient engagement in research studies. As an example, for the methods section, the GRIPP2 recommends clear description of the engagement methods, whereas our framework provides possible scope and descriptors. Contributors to CMAJ Open could use these valuable tools when preparing their manuscript for the patient-oriented research collection.

References
1. Patrick K, Kebbe M, Aubin D. A home for patient-oriented research. Canadian Medical Association Journal. 2018;190(20):E607-E.
2. Staniszewska S, Brett J, Simera I, Seers K, Mockford C, Goodlad S, et al. GRIPP2 reporting checklists: tools to improve reporting of patient and public involvement in research. BMJ (Clinical research ed). 2017 Aug 02;358:j3453.
3. Hamilton CB, Leese JC, Hoens AM, Li LC. Framework for Advancing the Reporting of Patient Engagement in Rheumatology Research Projects. Current Rheumatology Reports. 2017;19(7):38.