[HTML][HTML] Helping clinicians and patients navigate electronic patient portals: ethical and legal principles

S Mehta, T Jamieson, AD Ackery - CMAJ, 2019 - Can Med Assoc
CMAJ| OCTOBER 7, 2019| VOLUME 191| ISSUE 40 E1101 patient portal, it is crucial to
define which person, group or organization is the custodian to frame legal responsibility. A …

Patient portal access for caregivers of adult and geriatric patients: reframing the ethics of digital patient communication

T Ganta, JM Appel, N Genes - Journal of Medical Ethics, 2023 - jme.bmj.com
Patient portals are poised to transform health communication by empowering patients with
rapid access to their own health data. The 21st Century Cures Act is a US federal law that …

The new era of informed consent: getting to a reasonable-patient standard through shared decision making

ES Spatz, HM Krumholz, BW Moulton - Jama, 2016 - jamanetwork.com
Therightsofpatientstobeinformedaboutcared… in clinical practice is yet again under scrutiny,
both in the United States and around the world. The well-ingrained ethical-legal process of …

Provider obligations for patient portals under the 21st Century Cures Act

A Dworkowitz - Health Affairs Forefront, 2022 - healthaffairs.org
When Congress prohibited “information blocking” under the 21st Century Cures Act in 2016,
it made no reference to patient portals, the websites through which many health care …

Informed consent is inadequate and shared decision making is ineffective: Arguing for the primacy of authenticity in decision-making paradigms

J Berger - The American Journal of Bioethics, 2017 - Taylor & Francis
Ubel and colleagues report on a variety of deficits affecting the quality of decision making in
health care (Ubel, Scherr, and Fagerlin 2017). Although shared decision making is intended …

[HTML][HTML] Point and counterpoint: patient control of access to data in their electronic health records

K Caine, WM Tierney - Journal of general internal medicine, 2015 - Springer
Information collection, storage, and management is central to the practice of health care. For
centuries, patients' and providers' expectations kept medical records confidential between …

21st Century Cures Act: ethical recommendations for new patient-facing products

BN Durieux, M DeCamp… - Journal of the American …, 2022 - academic.oup.com
Background Recent legislation ensuring patient access to their electronic health records
represents a promising national commitment to patient empowerment. Access and …

From paternalistic to patient-centered: Strategies to support patients with the immediate release of medical records

LD Leonard, E Cumbler… - … Journal of Surgery, 2021 - americanjournalofsurgery.com
Imagine your patient receiving a notification on their smartphone. They open their patient
portal while sitting in the bleachers at their child's baseball game and read the results of their …

Navigating Clinical and Business Ethics While Sharing Patient Data

KN Michelson, JG Adams, JMM Faber - Jama, 2022 - jamanetwork.com
The primary function of electronic health care data is to enable the provision of health care
services to individuals. Sharing these data for public health and research purposes are …

Getting off the leash

T Tomlinson - The American Journal of Bioethics, 2018 - Taylor & Francis
Klugman and colleagues (2018) provide a very useful overview of the tremendous variety of
ethical and legal questions raised by the emergence of" digital medicines," especially those …