Patients seeking more involvement at medical meetings

P Rich - 2018 - Can Med Assoc
Patient involvement at clinical and health policy conferences in Canada is fast becoming
more than just a nod to patient engagement. Patient groups want substantive involvement in …

Lessons learned from developing a patient engagement panel: an OCHIN report

J Arkind, S Likumahuwa-Ackman… - The Journal of the …, 2015 - Am Board Family Med
There is renewed interest in patient engagement in clinical and research settings, creating a
need for documenting and publishing lessons learned from efforts to meaningfully engage …

Operationalizing the principles of patient engagement through a Patient Advisory Council: Lessons and recommendations

I Nielssen, M Santana, S Pokharel, K Strain… - Health …, 2024 - Wiley Online Library
Abstract Background Inclusiveness, Support, Mutual Respect and Co‐Build are the four
pillars of patient engagement according to the Strategy for Patient‐Oriented Research …

[HTML][HTML] Demonstrating the value of patient-oriented research in Ontario

D Fergusson, Z Monfaredi - CMAJ, 2018 - Can Med Assoc
The IMPACT projects demonstrate the intuitive: patients are valuable partners and contribute
meaningfully in many ways. Across all projects, patient or community partners were …

Engaging patients as partners in health research: lessons from BC, Canada

BJ Holmes, S Bryan, K Ho… - Healthcare Management …, 2018 - journals.sagepub.com
Canada is seeing increased interest in engaging patients in health research, recognizing
the potential to improve its relevance and quality. The momentum is promising, but there …

The role of patient advisory councils in health research: lessons from two provincial councils in Canada

M Warren, T Leamon, A Hall, L Twells… - Journal of patient …, 2020 - journals.sagepub.com
This article describes two patient advisory councils (PACs) in Canada in order to contribute
to the limited evidence base on how they might facilitate patient engagement in health …

[HTML][HTML] Challenges in measuring patient participation: case studies from British Columbia's Patients as Partners initiative

K McQuillen, C Davis, K Ho, P McGowan… - J Participat …, 2013 - participatorymedicine.org
Over the past decade, there have been many efforts to improve public engagement in health
care. British Columbia (BC) began one such effort, called Patients as Partners, in 2008 …

Facilitating and inhibiting factors for long-term involvement of patients at outcome conferences—lessons learnt from a decade of collaboration in OMERACT: a …

M de Wit, T Abma, M Koelewijn-Van Loon, S Collins… - BMJ open, 2013 - bmjopen.bmj.com
Objective Several studies have provided insights into the conditions for successful patient
involvement in health research. We recently demonstrated that long-term engagement with …

The Capacity for Patient Engagement: What Patient Experiences Tell Us About What's Ahead.

C Canfield - Healthcare Quarterly (Toronto, Ont.), 2018 - europepmc.org
1. Citizen-patient who volunteers across Canada and internationally to expand system
partnerships with patients, carers and communities. Her work since 2008 earned her …

[HTML][HTML] Reflections on patient engagement by patient partners: how it can go wrong

DP Richards, S Poirier, V Mohabir, L Proulx… - Research involvement …, 2023 - Springer
As six patient partners in Canada, we aim to contribute to learning and to provide an
opportunity to reflect on patient engagement (PE) in research and healthcare environments …