Social, psychological and existential well-being in patients with glioma and their caregivers: a qualitative study

D Cavers, B Hacking, SE Erridge, M Kendall, PG Morris… - Cmaj, 2012 - Can Med Assoc
Background: Cerebral glioma has a devastating impact on cognitive, physical, social,
psychological and spiritual well-being. We sought to understand the multidimensional …

The quality of life of patients with malignant gliomas and their caregivers

C Muñoz, G Juarez, ML Muñoz, J Portnow… - Social work in health …, 2008 - Taylor & Francis
The grim prognosis that accompanies a diagnosis of a malignant glioma affects quality of life
(QOL) as patients attempt to adapt to overwhelming losses. Caregivers also experience …

[HTML][HTML] Coping strategies and quality of life: a longitudinal study of high-grade glioma patient-caregiver dyads

K Baumstarck, O Chinot, E Tabouret, P Farina… - Health and Quality of …, 2018 - Springer
Background Among a sample of patient-informal caregiver dyads in the specific context of
new diagnoses of high-grade glioma in the time-frame between diagnosis and the third …

Adjustment and support needs of glioma patients and their relatives: serial interviews

D Cavers, B Hacking, SC Erridge, PG Morris… - Psycho …, 2013 - Wiley Online Library
Objective To understand factors influencing the process of adjustment to a diagnosis of
glioma. Methods Twenty‐six patients and 23 relatives took part in 80 in‐depth qualitative …

Daily life experiences of patients with a high-grade glioma and their caregivers: a longitudinal exploration of rehabilitation and supportive care needs

K Piil, M Juhler, J Jakobsen… - Journal of Neuroscience …, 2015 - journals.lww.com
Background: There is a lack of knowledge regarding the breadth of needs for rehabilitation
and supportive care across the disease and treatment trajectory for patients with a high …

The impact of a high-grade glioma on everyday life: a systematic review from the patient's and caregiver's perspective

W Sterckx, A Coolbrandt, BD de Casterlé… - European Journal of …, 2013 - Elsevier
BACKGROUND: With poor prognosis and disabling symptomatology high-grade gliomas
affect not only the patient but also the family. PURPOSE: The aim of this systematic review is …

Needs and preferences among patients with high‐grade glioma and their caregivers–A longitudinal mixed methods study

K Piil, J Jakobsen, KB Christensen… - European journal of …, 2018 - Wiley Online Library
Previous reports on the patient perspective of daily life during a 1‐year high‐grade glioma
(HGG) trajectory from the time of diagnosis are sparse. The aim of this longitudinal mixed …

The burden of brain tumor: a single-institution study on psychological patterns in caregivers

CY Finocchiaro, A Petruzzi, E Lamperti, A Botturi… - Journal of neuro …, 2012 - Springer
Quality of life and well-being in caregivers are usually partly neglected since all attention is
focused on patients and the way they react to the illness. Carers also usually neglect their …

Palliative and supportive care needs of patients with high-grade glioma and their carers: a systematic review of qualitative literature

G Moore, A Collins, C Brand, M Gold… - Patient Education and …, 2013 - Elsevier
OBJECTIVE: Patients diagnosed with Primary Malignant Glioma (PMG) face substantial
challenges with poor prognosis, high symptom burden and care needs. This study aims to …

Caring for someone with high-grade glioma: a time of rapid change for caregivers

R McConigley, G Halkett, E Lobb… - Palliative …, 2010 - journals.sagepub.com
Patients diagnosed with high-grade gliomas have a poor prognosis and limited life
expectancy, and often experience rapid decline in function. Caring for a patient with high …