Tools to improve reporting of patient-oriented research
Our collaborative research team commends CMAJ for launching the patientoriented
research collection in CMAJ Open. 1 Particularly, the specification for authors to report “how …
research collection in CMAJ Open. 1 Particularly, the specification for authors to report “how …
[HTML][HTML] Measuring the impact of patient-engaged research: how a methods workshop identified critical outcomes of research engagement
EC Dillon, L Tuzzio, S Madrid, H Olden… - Journal of Patient …, 2017 - ncbi.nlm.nih.gov
Purpose While strategies to evaluate the influence of engaging patient partners in research,
such as the Patient-Centered Outcomes Research Institute (PCORI) WE-ENACT surveys …
such as the Patient-Centered Outcomes Research Institute (PCORI) WE-ENACT surveys …
Best Practices in Patient Engagement in Research: Creating an Engagement Checklist
SD Madrid, LA Wright - Journal of Patient-Centered …, 2015 - institutionalrepository.aah.org
Background/Aims: With the establishment of the Patient-Centered Outcomes Research
Institute in 2010 and subsequent explosion in recognition of the importance of patient …
Institute in 2010 and subsequent explosion in recognition of the importance of patient …
Protocol: reporting and quality of patient engagement: status quo in best practice examples
SG Schorr, A Sierawska, S Weschke - OSF Published Online …, 2020 - bmjopen.bmj.com
Background There is strong agreement that patients' viewpoints should be included in
clinical research as they are the most affected by it (1). Different approaches can be used to …
clinical research as they are the most affected by it (1). Different approaches can be used to …
Whom to Engage in Patient‐Engaged Research? Reflection on Selection
SR Morain - Hastings Center Report, 2018 - Wiley Online Library
Engaging patients in research has come to be viewed as a vital component of high‐quality
research, and funders now regard engaging patients and other stakeholders as a core …
research, and funders now regard engaging patients and other stakeholders as a core …
[PDF][PDF] Building Patient Engagement in Research: A Guide for Research Teams
PA Board - perc-phc.mcmaster.ca
Background The benefit of integrated knowledge translation involving knowledge users,
principally conceptualized as those upon whom the responsibility for funding and …
principally conceptualized as those upon whom the responsibility for funding and …
[HTML][HTML] The prevalence of patient engagement in published trials: a systematic review
D Fergusson, Z Monfaredi, K Pussegoda… - Research Involvement …, 2018 - Springer
Plain English summary With the growing movement to engage patients in research,
questions are being asked about who is engaging patients and how they are being …
questions are being asked about who is engaging patients and how they are being …
[PDF][PDF] Contributions of Patient Engagement In Research: Early Findings From The Patient-Centered Outcomes Research Institute
L Forsythe, K Carman - m.jimmypike.com
Contributions of Patient Engagement in Research: Early Findings from the Patient-Centered
Outcomes Research Institute Page 1 Contributions of Patient Engagement In Research: Early …
Outcomes Research Institute Page 1 Contributions of Patient Engagement In Research: Early …
Patient‐engaged research: Choosing the “right” patients to avoid pitfalls
To ensure that the information resulting from research is relevant to patients, the Patient‐
Centered Outcomes Research Institute eschews the “traditional health research” paradigm …
Centered Outcomes Research Institute eschews the “traditional health research” paradigm …
[HTML][HTML] A critical discussion of patient engagement in research
AE Bombak, HM Hanson - Journal of Patient-Centered Research …, 2017 - ncbi.nlm.nih.gov
Patients are increasingly expected to take a more involved role in research. Funding for
some projects now requires incorporating patients' viewpoints or involvement in research …
some projects now requires incorporating patients' viewpoints or involvement in research …