Tools to improve reporting of patient-oriented research

CB Hamilton, AM Hoens, LC Li - CMAJ, 2018 - Can Med Assoc
Our collaborative research team commends CMAJ for launching the patientoriented
research collection in CMAJ Open. 1 Particularly, the specification for authors to report “how …

[HTML][HTML] Measuring the impact of patient-engaged research: how a methods workshop identified critical outcomes of research engagement

EC Dillon, L Tuzzio, S Madrid, H Olden… - Journal of Patient …, 2017 - ncbi.nlm.nih.gov
Purpose While strategies to evaluate the influence of engaging patient partners in research,
such as the Patient-Centered Outcomes Research Institute (PCORI) WE-ENACT surveys …

Best Practices in Patient Engagement in Research: Creating an Engagement Checklist

SD Madrid, LA Wright - Journal of Patient-Centered …, 2015 - institutionalrepository.aah.org
Background/Aims: With the establishment of the Patient-Centered Outcomes Research
Institute in 2010 and subsequent explosion in recognition of the importance of patient …

Protocol: reporting and quality of patient engagement: status quo in best practice examples

SG Schorr, A Sierawska, S Weschke - OSF Published Online …, 2020 - bmjopen.bmj.com
Background There is strong agreement that patients' viewpoints should be included in
clinical research as they are the most affected by it (1). Different approaches can be used to …

Whom to Engage in Patient‐Engaged Research? Reflection on Selection

SR Morain - Hastings Center Report, 2018 - Wiley Online Library
Engaging patients in research has come to be viewed as a vital component of high‐quality
research, and funders now regard engaging patients and other stakeholders as a core …

[PDF][PDF] Building Patient Engagement in Research: A Guide for Research Teams

PA Board - perc-phc.mcmaster.ca
Background The benefit of integrated knowledge translation involving knowledge users,
principally conceptualized as those upon whom the responsibility for funding and …

[HTML][HTML] The prevalence of patient engagement in published trials: a systematic review

D Fergusson, Z Monfaredi, K Pussegoda… - Research Involvement …, 2018 - Springer
Plain English summary With the growing movement to engage patients in research,
questions are being asked about who is engaging patients and how they are being …

[PDF][PDF] Contributions of Patient Engagement In Research: Early Findings From The Patient-Centered Outcomes Research Institute

L Forsythe, K Carman - m.jimmypike.com
Contributions of Patient Engagement in Research: Early Findings from the Patient-Centered
Outcomes Research Institute Page 1 Contributions of Patient Engagement In Research: Early …

Patient‐engaged research: Choosing the “right” patients to avoid pitfalls

EA Largent, HF Lynch, MS McCoy - Hastings Center Report, 2018 - Wiley Online Library
To ensure that the information resulting from research is relevant to patients, the Patient‐
Centered Outcomes Research Institute eschews the “traditional health research” paradigm …

[HTML][HTML] A critical discussion of patient engagement in research

AE Bombak, HM Hanson - Journal of Patient-Centered Research …, 2017 - ncbi.nlm.nih.gov
Patients are increasingly expected to take a more involved role in research. Funding for
some projects now requires incorporating patients' viewpoints or involvement in research …