On the benefits of speech-language therapy for individuals born with cleft palate: A systematic review and meta-analysis of individual participant data

A Sand, E Hagberg, A Lohmander - Journal of Speech, Language, and …, 2022 - ASHA
Purpose: Cleft lip and/or palate (CLP) is a common birth defect, and after reconstructive
surgery, about 50% of children at 5 years of age have speech deviations and are referred to …

Psychological and peer difficulties of children with cleft lip and/or palate: A systematic review and meta-analysis

EK Branson, VM Branson, R McGrath… - The Cleft Palate …, 2024 - journals.sagepub.com
Objectives A systematic review and meta-analysis were conducted to determine if children
born with cleft lip and/or palate are at increased risk of psychological and peer difficulties …

Psychometric findings for the SCAR-Q patient-reported outcome measure based on 731 children and adults with surgical, traumatic, and burn scars from four countries

NI Ziolkowski, AL Pusic, JS Fish… - Plastic and …, 2020 - journals.lww.com
Background: Each year, millions of individuals develop scars secondary to surgery, trauma,
and/or burns. Scar-specific patient-reported outcome measures to evaluate outcomes are …

CLEFT-Q: detecting differences in outcomes among 2434 patients with varying cleft types

KWYW Riff, E Tsangaris, CR Forrest… - Plastic and …, 2019 - journals.lww.com
Background: Measuring the patient perspective is important in evaluating outcomes of cleft
care. Understanding how treatment outcomes vary depending on cleft type may allow for …

Modern surgery-first approach concept in cleft-orthognathic surgery: a comparative cohort study with 3D quantitative analysis of surgical-occlusion setup

HJ Seo, R Denadai, BCJ Pai, LJ Lo - Journal of Clinical Medicine, 2019 - mdpi.com
Despite the evident benefits of the modern surgery-first orthognathic surgery approach
(reduced treatment time, efficient tooth decompensation, and early improvement in facial …

Establishing content validity of LIMB-Q Kids: a new patient-reported outcome measure for lower limb deformities

H Chhina, A Klassen, D Bade, J Kopec… - Quality of Life Research, 2022 - Springer
Purpose To establish the content validity of LIMB-Q Kids, a new patient-reported outcome
measure (PROM) for children with lower limb deformities. This study focused on three key …

Establishment of a condition-specific quality-of-life questionnaire for children born with esophageal atresia aged 2–7 across 14 countries

International EA-QoL Group - Frontiers in Pediatrics, 2023 - frontiersin.org
Background Esophageal atresia (EA) is a rare congenital anomaly characterized by a
discontinuity of the esophagus. Following surgical repair, survival rates have improved …

Most efficient and meaningful patient reported appearance assessment in different cleft types and age-groups with Cleft-Q

S Ombashi, MSIC Kurniawan… - Plastic and …, 2023 - journals.lww.com
BACKGROUND: The CLEFT-Q, a questionnaire developed and validated specifically for
cleft patients, contains 7 'appearance'scales. The ICHOM (International Consortium of …

Patient‐reported outcomes in childhood head and neck rhabdomyosarcoma survivors and their relation to physician‐graded adverse events—A multicenter study …

M Morfouace, MLF Hol, RA Schoot, O Slater… - Cancer …, 2023 - Wiley Online Library
Introduction Adverse events (AE) of treatment are prevalent and diverse in head and neck
rhabdomyosarcoma (HNRMS) survivors. These AEs are often reported by physicians; …

[HTML][HTML] FACE-Q craniofacial module: part 1 validation of CLEFT-Q scales for use in children and young adults with facial conditions

AF Klassen, C Rae, KWYW Riff, N Bulstrode… - Journal of Plastic …, 2021 - Elsevier
Summary Background The CLEFT-Q includes 12 independently functioning scales that
measure appearance (face, nose, nostrils, teeth, lips, jaws), health-related quality of life …