Psychometric findings and normative values for the CLEFT-Q based on 2434 children and young adult patients with cleft lip and/or palate from 12 countries

AF Klassen, KWYW Riff, NM Longmire, A Albert… - Cmaj, 2018 - Can Med Assoc
BACKGROUND: Patients with cleft lip and/or palate can undergo numerous procedures to
improve appearance, speech, dentition and hearing. We developed a cleft-specific patient-…

Development of a new module of the FACE-Q for children and young adults with diverse conditions associated with visible and/or functional facial differences

NM Longmire, KWYW Riff, JL O'Hara… - Facial Plastic …, 2017 - thieme-connect.com
Appearance and facial function are concepts not well addressed in current pediatric patient-reported
outcome measures (PROM) for facial conditions. We aimed to develop a new …

CLEFT-Q: detecting differences in outcomes among 2434 patients with varying cleft types

…, CR Forrest, T Goodacre, NM Longmire… - Plastic and …, 2019 - journals.lww.com
Background: Measuring the patient perspective is important in evaluating outcomes of cleft
care. Understanding how treatment outcomes vary depending on cleft type may allow for …

Patient‐reported experience measures are essential to improving quality of care for chronic wounds: An international qualitative study

…, L Poulsen, NM Longmire… - International wound …, 2020 - Wiley Online Library
Traditional quality measures for chronic wounds have focused on objective outcomes that
are challenging to risk adjust, lack patient input, and have limited ability to inform quality …

[HTML][HTML] Exploring patient experience of facial nerve palsy to inform the development of a PROM

JH Norris, NM Longmire, S Kilcoyne… - … Surgery–Global Open, 2019 - journals.lww.com
Background: There is currently a mandate globally to incorporate patient’s perceptions of
their illness into outcome measures, in order to provide a deeper insight into medical practice. …

[HTML][HTML] Development of a new patient-reported outcome measure for ear conditions: the EAR-Q

AF Klassen, NM Longmire, NW Bulstrode… - … Surgery–Global Open, 2018 - journals.lww.com
Background: Patient-reported outcome measures are widely used to improve health services
and patient outcomes. The aim of our study was to describe the development of 2 ear-…

International mixed methods study protocol to develop a patient-reported outcome measure for all types of chronic wounds (the WOUND-Q)

…, KL Fan, C Gibbons, MM Hoogbergen, NM Longmire… - BMJ open, 2020 - bmjopen.bmj.com
Introduction Most patient-reported outcome measures (PROM) for chronic wounds are
specific to a single wound type (eg, pressure ulcer) or part of the body. A barrier to outcome …

Concepts important to patients with facial differences: a qualitative study informing a new module of the FACE-Q for children and young adults

R Kamran, NM Longmire, C Rae… - The Cleft Palate …, 2021 - journals.sagepub.com
Objective: The concepts important to children and young adults who undergo treatments for
facial differences are not well-defined. Measurement of treatment outcomes from the patient’…

Barriers and facilitators to a good bowel preparation for colonoscopy in children: a qualitative study

…, H Nael, NM Longmire, M Zachos - Journal of Pediatric …, 2018 - journals.lww.com
Background: A well-visualized colon during colonoscopy has a direct impact on interpretation
of findings and need for repeat procedure. Studies have been conducted in the adult …

[HTML][HTML] Protocol: International mixed methods study protocol to develop a patient-reported outcome measure for all types of chronic wounds (the WOUND-Q)

…, KL Fan, C Gibbons, MM Hoogbergen, NM Longmire… - BMJ Open, 2020 - ncbi.nlm.nih.gov
Introduction Most patient-reported outcome measures (PROM) for chronic wounds are
specific to a single wound type (eg, pressure ulcer) or part of the body. A barrier to outcome …