Illuminating and mitigating the evolving impacts of COVID-19 on ethnocultural communities: a participatory action mixed-methods study

CMAJ. 2021 Aug 9;193(31):E1203-E1212. doi: 10.1503/cmaj.210131.

Abstract

Background: The COVID-19 pandemic has exacerbated disparities in poverty and illness for people in vulnerable circumstances in ethnocultural communities. We sought to understand the evolving impacts of COVID-19 on ethnocultural communities to inform intersectoral advocacy and community action.

Methods: The Illuminate Project used participatory action research, with cultural health brokers as peer researchers, from Sept. 21 to Dec. 31, 2020, in Edmonton, Alberta. Twenty-one peer researchers collected narratives from members of ethnocultural communities and self-interpreted them as they entered the narratives into the SenseMaker platform, a mixed-method data collection tool. The entire research team analyzed real-time, aggregate, quantitative and qualitative data to identify emerging thematic domains, then visualized these domains with social network analysis.

Results: Brokers serving diverse communities collected 773 narratives. Identified domains illuminate the evolving and entangled impacts of COVID-19 including the following: COVID-19 prevention and management; care of acute, chronic and serious illnesses other than COVID-19; maternal care; mental health and triggers of past trauma; financial insecurity; impact on children and youth and seniors; and legal concerns. We identified that community social capital and cultural brokering are key assets that facilitate access to formal health and social system supports.

Interpretation: The Illuminate Project has illustrated the entangled, systemic issues that result in poor health among vulnerable members of ethnocultural communities, and the exacerbating effects of COVID-19, which also increased barriers to mitigation. Cultural brokering and community social capital are key supports for people during the COVID-19 pandemic. These findings can inform policy to reduce harm and support community resiliency.

MeSH terms

  • Alberta / epidemiology
  • COVID-19 / ethnology*
  • COVID-19 / prevention & control
  • COVID-19 / therapy
  • Community Health Services / organization & administration*
  • Consumer Health Information
  • Female
  • Financial Stress
  • Health Services Research
  • Healthcare Disparities
  • Humans
  • Male
  • Pandemics*
  • Poverty
  • SARS-CoV-2
  • Social Capital
  • Social Network Analysis
  • Social Support
  • Vulnerable Populations / ethnology*