Quantitative data collected at 6 weeks, 6 months and 12 months
| Questionnaires | 6 wk | 6 mo | 1 yr |
|---|---|---|---|
| POS* | |||
| Questionnaires sent | 21 | 10 | 6 |
| Questionnaires returned | 13 | 5 | 4 |
| Return rate, % | 62 | 50 | 67 |
| POS score (median) | 15 | 8 | 10 |
| POS score (range) | 4–25 | 5–21 | 5–26 |
| EQ-5D† | |||
| Questionnaires sent | 18 | 9 | 6 |
| Questionnaires returned | 12 | 5 | 4 |
| Return rate, % | 67 | 56 | 67 |
| EQ-5D score (median) | 19 | 11 | 18 |
| EQ-5D score (range) | 5–23 | 5–18 | 13–22 |
| EQ-5D VAS score (median)‡ | 50 | 72 | 45 |
| EQ-5D VAS score (range) | 15–90 | 60–90 | 30–75 |
| CSI§ | |||
| Questionnaires sent | 27 | 8 | 5 |
| Questionnaires returned | 14 | 4 | 3 |
| Return rate, % | 52 | 50 | 60 |
| CSI score (median) | 8 | 7 | 7 |
| CSI score (range) | 3–11 | 4–8 | 3–8 |
Note: CSI = Carer Strain Index, POS = Palliative Care Outcome scale.
↵* POS ranges from 0 to 4 in 10 dimensions of need. Each of these dimensions is monitored individually over time and not usually summated.
↵† EQ5D range 5–25 where 5 represents no problems.
↵‡ EQ5D VAS range 0–100 where 0 is worst health.
↵§ CSI score range 0–12 where 0 represents no caregiver strain. A CSI score of 7 or more indicates a high level of stress.