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Thank you for this review of patient oriented research and the lack of clarify about the determination of impact. My question is the difference between patient-oriented research and community based research?
I have been involved in research that engages a community (geographic or disease identified) in the design, supervision and outcomes. This is an essential component of research with specific populations and may produce permission, engagement and policy/behavior change. I assume that in patient-oriented research the engaged entity is a patient and not a collection of patients? Where is this boundary and is this not mostly community based research?